Ethics. Research. Community.

Blogging Ethics

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03/28/2020 - 3:22pm

The Colorado Program for Patient Centered Decisions has released a patient decision aid for patients to make choices about whether they would want mechanical ventilation.

03/28/2020 - 3:22pm

The Colorado Program for Patient Centered Decisions has released a patient decision aid for patients to make choices about whether they would want mechanical ventilation.

This one-page document is not an advance directive. Rather, it just asks about p...

03/28/2020 - 11:05pm

“That couch,” observed the salesperson, “is twice as smart at being a couch than you are at being a person.”

“I’ll take it.”...

03/27/2020 - 3:56pm

The Final Exit Network is not as well known as other end-of-life advocacy organizations like Compassion & Choices. But its newly redesigned website may help clarify its mission and activities.

FEN has a different mission from C&C and Death wit...

03/27/2020 - 3:56pm

The Final Exit Network is not as well known as other end-of-life advocacy organizations like Compassion & Choices. But its newly redesigned website may help clarify its mission and activities.

03/27/2020 - 12:22pm

This editorial presented by the American Journal of Bioethics. You can see the April 2020 issue by clicking here.

by Emily Shearer & David Magnus

In their article, “The ‘Ought-Is Problem:’ An Implementation Science Framework for Translating Ethical Norms into Practice,” Sisk et al. correctly draw a distinction between aspirational norms (“broad claims that are easily agreed upon”–e.g. “Everyone should have their goals of care met at the end of life”)–and specific norms (claims that provide “direct guidance” about specific actions that should ensue–e.g.…

03/27/2020 - 12:19pm

Presented in conjunction with the American Journal of Bioethics. You can see the April 2020 issue by clicking here.

by Nanette Elster & Kayhan Parsi

We live in a representative democracy. We presumably have the franchise to elect who will represent our interests. Moreover, we live in a society with a range of organizations that advocate for certain causes and represent the interests of a variety of stakeholders. The autism “community” is no different. Yet, no monolithic set of interests represents all the members of the autism community.…

03/27/2020 - 12:15pm

Presented courtesy of the American Journal of Bioethics. You can see the April 2020 issue by clicking here. 

by Jordan P. Richardson & Richard R. Sharp

Patient advocacy organizations emerged in the 1950s to collectivize patient power and promote patient’s shared interests and rights. Since that time, patient advocacy organizations have grown in number and influence, filling an assortment of roles that include increasing public awareness, providing support to patients and families, building community, and advocating for research. It is their role in political activism that McCoy et al.…

03/27/2020 - 12:01pm

I welcome Dr. Françoise Baylis, University Research Professor at the NTE Impact Ethics interdisciplinary research team based at the Faculty of Medicine, Dalhousie University in Halifax Canada. She is a member of the Order of Canada and the Order of Nova Scotia, as well as a Fellow of the Royal Society of Canada and a Fellow of the Canadian Academy of Health Sciences. In 2017 she was awarded the Canadian Bioethics Society Lifetime Achievement Award. She is a distinguished researcher and prolific scholar with 200 or so books, refereed publications and chapters to her name. Her latest book published by Harvard University Press is Altered Inheritance: CRISPR and the Ethics of Human Genome Editing. At the time of recording we knew the book had been nominated for an Association of American Publishers Professional and Scholarly Excellence (or PROSE) award, which it subsequently won!

The Week in Health Law Podcast from Nicolas Terry is a commuting-length discussion about some of the more thorny issues in health law and policy. Subscribe at Apple Podcasts or Google Play, listen at Stitcher Radio, SpotifyTunein or Podbean.

Show notes and more are at TWIHL.com. If you have comments, an idea for a show or a topic to discuss you can find me on Twitter @nicolasterry or @WeekInHealthLaw.

The post New TWIHL with Françoise Baylis appeared first on Bill of Health.

03/27/2020 - 8:48am

As the U.S. health care system faces the strain of responding to the coronavirus pandemic, critical services are being provided by international medical graduates, who, in the years and months leading up to this crisis, have found their capacity to contribute limited by increasingly restrictive immigration policies. International medical graduates, physicians trained in other countries,… Read more

The post We Need International Medical Graduates to Help Fight Covid-19. Immigration Policies Keep Them Away appeared first on The Hastings Center.